Hollywood celebrities don't have the best of reputations.
From drug abuse to sex scandals to actors who use their
status to publicize their wayward views it is difficult to
find stories about the good that can be done.
This is one of those stories.
Little Jonny is like any other young boy. He loves to play
basketball and hang out with his friends in Arizona. Some
would even say he's a lucky kid because, during the summers,
he gets to go to the Big Island of Hawai'i to spend time with
his grandparents.
Five years ago, when he turned nine, he found out he had
rare disease called
adrenoleukodystrophy. Some of you may recognize the
disease as the one portrayed in the 1993 movie "Lorenzo's
Oil." The disease is characterized by a degeneration of the
myelin sheath on nerve fibers in the brain which leads to
progressive neurological disability.
Jonny knew he did not have a lot of time left on this
earth but before his time was up, he wanted to do one thing.
Meet a Hollywood star. Not just any star, but one that seemed
to like kids because he seemed so much to be one himself. So
his parents contacted the "Make a Wish Foundation." The
Foundation's mission is to "grant the wishes of children with
life-threatening medical conditions to enrich the human
experience with hope, strength, and joy."
But this disease acts so quickly that time was rapidly
running out on Jonny and it didn't look like the Foundation
would be able to make this little guy's wish come true.
However, they were able to arrange for Jonny's second wish of
seeing an Arizona Cardinals - Dallas Cowboys National
Football League game.
But news of the boy's first wish somehow made it to
the star. He was so moved by the story that he paid for all
the expenses of flying Jonny and his mother to Culver City,
California where he was filming a movie. When Jonny arrived
on set, the star shut down production for the day and spent
time playing basketball and doing other stuff Jonny wanted to
do.
By this time, the disease had progressed to a point where
Jonny couldn't hear, but the star used a pad of paper and
wrote down everything he wanted to say to Jonny. Needless to
say, that one day meant more to Jonny than almost any other
day in his too short life.
This actor didn't need to do what he did and he certainly
didn't do it for the publicity because he made sure there
wasn't any. If it wasn't for the boy's grandfather telling the
story, no one outside of the family would have known.
The day ended all to quickly and Jonny had to return home.
But the star kept in touch with the family via letters over
the next few months. And then the day came that all knew
would be coming. The disease that had already taken Jonny's
hearing, and then his eye sight, also took his life.
Upon getting the news of this, the star wrote one last
heartfelt two-page letter to Jonny's grieving parents. We
don't know for sure what the letter says but one could guess
he tried to give them support and peace. This, from a man who
touched a boy's life but for one day.
The actor's name? Adam Sandler.
Whatever his faults and whatever his skills as an actor may
be, the world could use a few more heroes like him.
Aloha!